Wednesday, February 14, 2007

The beginning of a journey

I was never into blogging, but perhaps it will be therapeutic, and I am willing to try anything. I was actually ecstatic to discover that Parker had Celiac Disease (CD). I was so tired of knowing that something was wrong, and not being able to fix it. He was sick for months. He gained no weight between his 12 and 15 month appointments. He had diarrhea 8+ times a day. Test after test showed us nothing, and he seemed to be in pain physically. I told every doctor available that he seemed to hurt and wince when he moved. They did x-ray's and told me he was fine. Then one day, a friend mentioned "maybe it's gluten?". I looked it up online, and called his pediatrician that day. Lo and behold, Celiac Disease. My friend and foe. After one week of being gluten free (GF). Parker was pulling up and crawling with no apparent pain. Within one week of being GF, Parker's diarrhea had stopped. Within one week of being GF, Parker had gained 10oz.!!

I say Celiac Disease is my friend, because it is manageable. As long as Parker does not consume ANY gluten, he can lead a healthy, normal life. When even a tiny amount enters his body, he gets sick. Most days are good, some days are bad. The bad days are becoming fewer and fewer as I get better about cooking, reading labels, and cross contamination.
Today was a good day.

6 comments:

Missy said...

I'm happy you started a blog! Also it is good to know what is actually wrong, and that is it manageable. Parker is so handsome, im glad he is becoming more and more pain free.

princessandpea said...

I'm looking forward to keeping up with Parker! I had never heard of CD before, but want to learn. I love the picture of Parker you posted. He is such a sweet little man.

Janice said...

I'm glad you started this - I look forward to keeping up with your blog :) I know very little about celiac disease but I'm glad I'll get a chanve to learn and help support you.

Jason, Jonda and Jack said...

It is great that you are doing this blog. Maybe it can help other parents determine what is going on with their child. And on a side note I just think that Parker is the cutest thing ever!

SkinCareMom said...

Glad you finally figured out what was causing Parker so many problems Em! I know it is a long road and Uncle Ric and I will be there whenever you need us!

Theresa Muenzel said...

its nice to know what the problem is isn't it... I just found out I have celiac and so does 4 out of 5 of my kids. I know its going to be a long road, but with the help and support I am getting I will make it trough it. Thanks for sharing