Gluten Free Mommy of Boys

Brennan and "his girl"

2009-09-07T11:13:00.000-07:00

Those of you that have ever been to my house, have probably noticed E*. E is Brennan's best friend, his "girl", the woman he says someday will be his wife. ;) They are adorable together playing legos, building forts, sharing a chair to play SPORE on the computer. E lives just a few houses down, and the days are loooooooong when we are home and she is not. They are adorably inseparable and we thank God that he gave us such great neighbors. E's parents are young like us, super nice, and share similar values (so I know Brennan will not come home to tell me all about the *new words* he learned at their house (rolls eyes)). Last night we had dinner together, and we had a great time. The kids (3 of ours+3 of theirs) played well together and it was a casual time of food and fun. I anticipate many more dinners together in the future, and I am thankful that we live in such a great neighborhood!

Two nights ago, Brennan and E were eating pizza in the backyard, and I noticed that they had a piece of yarn attaching themselves to each other. Each end was tied on one of their fingers. They ate that way, made a fort that way, and even figured out how to swing on the swings while tied to each other. Tomorrow night we find class lists will be posted at school. Even though we have prepped them to the possibility that they might not be in the same class together, I have a feeling there will be tears if they are not in the same class next year. I mean, it will be pretty hard to tie yourself to your best friend, if she is in another classroom. ;) Although...these two kids are pretty inventive. And I have a feeling that they won't let something like a classroom wall break their tie.

Looking back...it's a miracle!

2009-09-03T20:58:00.001-07:00

Sometimes when you are a mama to a special needs child, your life is currently (and always) so overwhelming, that it is difficult to look back and see how far you have come. Two years ago, Parker had virtually no language (expressive or receptive), no appropriate play skills, no interest in "our world". The focus of my life was to bring Parker into this world as much as possible, for him to know that we love him, and for him to be able to communicate his wants and needs. Flash forward to today. Life is still a struggle, but the problems are those that I would have prayed for two short years ago. My child speaks, plays, feeds himself, and is now (drum roll please) POTTY TRAINED!!! Who would have ever though that in two years we would have made such amazing progress. It is truly a miracle. We still struggle with many issues with Parker, and autism doesn't seem to leave, it just changes. I am truly blessed!

The Summer of '09- A pictorial

2009-09-02T17:21:00.000-07:00

We swam!

We camped in our NEW (to us) trailer!

We fished

We Partied!! (Brennan turned 7 and Parker turned 4)

We are enjoying our last week of summer. School starts Tuesday, Sept 8th for Parker (PreK at First Pres. Preschool) and Thursday, Sept 10th for Andrew (4th grade at Lone Pine) and Brennan (2nd grade at Lone Pine). We are starting to *ease* into a school schedule (much to the boy's dismay), which means earlier bedtimes. :):):)

Who invited rain to the summer party?!

2009-06-03T16:33:00.000-07:00

Today was the last day of school for Andrew and Brennan, and all week we have had dreadful weather! :( It is warm (80*), muggy, and we have had rain and thunderstorms off and on. It doesn't feel like summer to me, and my boys are a bit stir-crazy!! So, I made them some playdough and all three boys are playing happily (knock on wood) for now.

6 more school days!!

2009-05-27T09:02:00.000-07:00

The end of the school year is always bittersweet. I look forward to not dealing with homework and the alarm clock not going off before 7am, but I do NOT look for forward to filling the boys days with activities, while keeping up with work. I love the sunshine, popsicles in the backyard, and swimming at the lake.

The Journey Continues...

2009-05-26T15:36:00.000-07:00

I haven't blogged all year long. It wasn't out of a lack of desire. I wanted to, but life just got in the way. We are at the end of the school year. Andrew is about to finish third grade, Brennan is about to complete first grade, and Parker has only a few days left of his first year of preschool. This has been a full year. Matt and I still work for Sparrow Clubs and we love it! In addition, I work two nights a week at Redrock Italian Eatery as a server. Andrew has progressed in karate and now has advanced to "weapons training" (in addition to his regular classes). Brennan is playing soccer again. He loves it. I would like to enroll all three boys in swim lessons this summer. I am hoping that blogging will become a regular part of my life again. The boys grow up and change so fast that I think that this is an amazing way to document the journey...especially with Parker. I would never have believed that he would have made the progress this year that he has. He is talking so well and is making huge social gains!! I have had a few opportunities to go up to Salem to speak to legislators about Parkers story and the importance of adequately funding early intervention. This last time I went up and testified to the Dept of Education. It was a scary and humbling experience. I am always amazed that God would choose to use someone like me...just a mom...to speak to decision makers. But He does, and while it is WAY out of my comfort zone, I am trying to be obedient.
Now...lets see those cutie boys!!

First Day of School pics

2008-09-18T11:46:00.000-07:00

Yes, school has been "in session" for over two weeks. But I figured that most of you would want to see these...even if I am a "lame-o" blogger. ;)

Andrew started 3rd grade

Brennan is in 1st grade

And Parker goes to Early Intervention preschool 3 mornings a week

A summer pictorial

2008-08-23T09:30:00.000-07:00

This summer has been way to busy for me to have much *fun computer time*, so rather than writing pages and pages of all that you have missed from the Sampson bunch, I decided to show you in pics.

Here we go...

Father's Day weekend we went to the Oregon Coast. The kids and I hadn't been to the Oregon coast ever. It is very different than the California coast that we are used to, but we were prepared for chilly, windy weather. We had fun playing on the beach, shopping in downtown Seaside, and we rented a bike for 5 (super fun!).

Brennan turned 6 and Parker turned 3!

In July, we took a trip back to Missouri to visit the Sampson family and spend some time with Grandma Sampson. That trip was so much fun for all of us. Andrew and Bren were in *big boy* heaven (giant trampolines, 4-wheelers, the Ranger, huge slip-and-slides, swimming with frogs, and more). What I miss most is fresh sweet corn, picked by the boys from the fields any time of day!! Mmmmmmm....

We just recently got back from a long (but fun) trek down to the Bay Area. Matt and I were able to work on some stuff for the first Bay Area Sparrow Club :) and spend some great time with family. We attended Mark and Emily's wedding, celebrated my dad's bday with him, and I went on my 30th birthday trip to Disneyland!!!

A picture taken especially for Alisha! Wishing that I was having Mickey ice cream with you!

And at the end of our "Cali Adventure" we were able to take the boys to 75 cent night @ the Santa Cruz Beach Boardwalk. Mom and Poppi took us to Gilroy Gardens (which was beautiful!).

Wrinkles

2008-05-29T15:44:00.000-07:00

Honestly, my 30th birthday has barely come and gone, and I am getting wrinkles. Not really "laugh lines" or "crows feet", but what I will call "autism mommy exhaustion circles". I seem to be getting perma-lines from where I get bags under my eyes from lack of sleep or stress. I really want to do something about them (I am afraid that they will get worse), but I don't have the money to go and try out different things that create promises of clear, wrinkle-free eyes. Getting wrinkles is a part of getting older, and I am ok with that. That being said, I am realizing how vain I am. I find myself glancing in every "shiny" surface around our house, peering in hope that the lines have disappeared...they haven't.:(

Matt says that he loves me, and doesn't care if I have wrinkles. (He is a wonderful man) He thinks I need more sleep. He is probably right, although I think that it is more a lack of quality sleep than the actual hours.

Meanwhile, I will just do what they do on TV. Cucumber slices. Because instead of $50 for .2oz of a miracle, cucumbers are 3 for $1 at Food 4 Less. :)

End of the school year

2008-05-27T15:37:00.000-07:00

Even though it doesn't feel like the end of May (weather wise), it feels like another school year is coming to a close. The boys are excited for summer and the thrills that come with the last part of the year. For instance, today Bren climbs excitedly into the car as I am picking him up, and exclaims, "I had ice cream at school!" Unfortunately, he could not remember WHY they got ice cream (apparently all of the sugar so early in the morning had gone to his brain). Andrew came home yelling, "Guess what, Mom!?! No homework today!! Mrs. Coleman forgot to copy our reading logs!!"

You would have thought that Christmas had come early.

So now they are outside playing some game involving weapons (as boys will do), and dreaming of days with no school, running through the sprinklers, and Sonic slushes!

Days like these, I love being a mom of boys.

Good...but not as good as Auntie Lynnie's

2008-05-21T16:32:00.000-07:00

Last night I made fried potatoes. My intent was to make a big batch for the boys, so that it was easy to warm up for those early morning school breakfasts. My intent was that they would last a few days. That was my intent. ;)

So, as I am making them the boys are begging to have them with dinner. So much for a bunch of breakfasts! I served up two small bowls full for the two big boys, and decided that what I wanted was "De Anza Browns" potatoes (I miss eating them with my mommy). So I melted some cheese on a bowl of fried potatoes, added sour cream, avocado, and salsa (wishing I had some bacon). They were divine!! I think I will do them for dinner next week for the whole fam (with bacon).

Andrew and Bren are eating them at the bar. I ask, "How are they boys?"

Bren- "Good"

Andrew-"...but not as good as Auntie Lynnie's."

Oh well...I tried.

We only had enough for two small bowls for the big boys for breakfast. They were popular, even if they were not "Auntie Lynnie" quality.

Getting into the soccer groove

2008-05-19T16:52:00.000-07:00

First some pics, then the story.

PS- Bren is #15

So Brennan played kindersoccer in the fall and just started back up with the spring league. He loves it. In the fall, he was the "nice" team mate who stepped away to give someone else a chance to kick it (his team or the opposing team). I kept reminding him that it wasn't mean to try to kick the ball away from the other team, and to keep kicking it toward the goal if you have the ball. He would agree with what I was saying, and then continue to back away if someone came up to him. He didn't seem afraid...just kind and generous. During the entire season, he didn't score one goal. Lots of assists...but no goal.

Well, spring soccer is here and a different Brennan is playing. he is still sweet and kind, but something has clicked. The first game of the season, he scored THREE goals!!

funny pics

2008-05-18T15:14:00.001-07:00

Michael and Katie came over for dinner last week and were were playing with my new Mac Book Pro. I am excited about this computer for numerous reasons. Matt wrote a grant for 2 of them, which we got. Free computers are the best kind. I am producing all of the sparrow DVD's for our region now, and while my other mac works fine, while it is transferring/burning, etc. I can't use the computer. So now I can continue to work while producing the dvd's. Plus now I can work anywhere. In the fall Parker will be in a EI autism program 3x/wk, and I will probably be down at our Asante office more often. All of that to say, my new computer has a program called PhotoBooth. It takes a pic with my built in camera and has tons of different effects. Needless to say...we had a bit of fun. Here are a few to share with you:

Torn!!

2008-05-18T14:53:00.000-07:00

Yesterday we decided to have a garage sale. We are beginning to move out of some of our "baby stuff" and since Parker is our last, we don't need to hang on to things. ;) So as we were moving stuff out of the garage in the morning to set up for the sale, Parker's (the Crawford's) train table which was standing up on its end in the garage fell on me. It hit my calf hard and scraped downward...taking off some skin in the process. I cried like a baby. It hurt SO badly. The scrape hurt and burned, but my calf muscles were SO tight. They felt like they were constantly cramped. It was swelling, and by the afternoon I had two beautiful purple lumps in the back of my leg. I was in tears just trying to walk. After much coaxing from Matt and a friend who used to be a nurse (thx Laura) I went to urgent care. Apparently, I have torn some muscles in my calf. If I let it heal properly and stay off of it, it should heal itself in time. For those of you who know me...that is easier said than done. But I am doing my best to do the R.I.C.E thing (Rest, Ice, Compression, Elevation) and will hopefully be back up and around in no time.

Quote of the day:

"Mama, I don't want to hurt your feelings. But looking at your leg kinda makes me want to throw up." -Andrew (8)

*in his defense, it IS swollen and purple, and badly scraped* ;)

PS- The train table was out in the garage because our hardwood floors have gotten refinished and we have not moved it back in. We were NOT selling the Crawfords train table at our garage sale. (a sigh of relief all the way in Uganda)

To Brad and Alisha

2008-04-29T15:51:00.001-07:00

Look familiar?

Screwball Scramble- the game that requires no social interaction what-so-ever (except to hit brothers if they come to close, right) ;)

Thank you

2008-04-23T08:32:00.000-07:00

So, the Sampson crew had a great time at the Southern Oregon Autism Walk-A-Thon. It was FREEZING, but it feels so good to be with other families that are in the same daily fight as you. A special thank you to Michael and Katie, who came out to walk with us! I am so grateful to each and every one of you that sent in your donations to Team Parker. Because of your generosity, Team Parker came in 3rd place! The first two places were won by organizations, not families so I am pretty impressed by all of you.

Thank you again.

PS- Parker may be sad in the first pic, but he quickly perked up when he noticed the grass had NUMBERS on it(see third pic). He was happy as a clam walking the field, and counting the yard lines!;)

Needles, Zoo, and Charlie

2008-03-26T14:47:00.000-07:00

We have been so incredibly busy around here, I have had NO time to post. A few weeks ago was our appointment with Dr. Green in Oregon City. He is a DAN doctor and we were very excited to have an appointment with him for Parker. We decided to make a 3 day trip out of it, so we were not running up there and back in 24 hours.

The actual appointment w/ Dr. Green could not have gone better. He addressed all of our biomedical concerns and gave us more information and things to try than we ever could have asked for. We are trying many things over the next few weeks, which include different enzymes, supplements, vitamins, and B-12 injections. I was really nervous about giving Parker injections every three days, but I did it and we have seen a HUGE difference already! I give them to him while he is sleeping, and so far he hasn't even woken up!;)

We had a whole BUNCH of test done, including 9 blood tests, 4 stool tests, and one urine test. We have a phone appointment at the beginning of May to go over the results, and figure out what the plan is.

Bloodwork is NO FUN for anyone!

Hanging with Daddy after the tests are complete
As part of our little trip, we went to the Oregon Zoo in Portland. It was cold and sprinkling off and on, but there was hardly anyone there, which was great! The boys had a great time, and the zoo isn't too huge which was good for everyone!

And last, but not least...our newest addition. Meet Charlie:

The newest little boy in the Sampson crew. He is a Cavi-poo, which is half Cavalier King Charles Spaniel and half Poodle. He was born January 18th 2008, and we brought him home a week ago. The boys are over the moon to FINALLY have a dog!! It is true what they say. Having a puppy IS like having another baby, but we thought that it was important to raise a dog from a puppy in this loud house...especially for Parker. He is so incredibly fun and soft, but I REALLY Can't wait until he sleeps through the night...and potty trains!!

I will update more soon!

P...A...R...

2008-02-13T20:53:00.000-08:00

Have we mentioned that he is spelling? Yup. The boy spells. He doesn't say his name, but he can sure spell it!! Monica (2,3,4 as she is lovingly referred to by Parker) was working on a worksheet with Park. They were coloring a duck and she told him she was writing his name on the top of the page, and did so. The next day, they were coloring shapes, and she wrote his name on the top of the paper, without saying anything, and he just watched. The third day she got out a paper, and asked, "Should we write your name on the paper?"
We hear a soft, "Peeeee"
She silently writes a "P" and looks at me.
He is staring at the page.
"A"
She writes it. I am silently FREAKING OUT!!
"R"
I feel like I am going to hyperventilate. Monica is holding it together for the both of us. ;)
She writes an 'R' and looks at Parker.
"What comes next?"
"Kaaaaay"
She writes a 'K'.
"Eeeeeee"
She writes an 'E'.
I pinch myself. This can't really be happening. Our son can spell?!
"what comes next, Parker?"
"R!"
He says this last letter in a sing-song voice. I grab him and pull him into a hug.
"Good Boy, Parker!!!!! You are amazing!!!! You spelled Parker!!!"
He looks at me (his eye contact is improving)
"Peee..."
And it starts again.

There is not much better than these huge sucesses. He doesn't say his name, but he can spell it!!!
The wonderful couple in the nursery at church told me that he spelled "W-E-L-C-O-M-E" to everyone who poked their head in (there is a sign up on one of the walls);)
My silly, amazing boy!

Our family is expanding!!

2008-02-04T17:12:00.000-08:00

No, I am not pregnant! (I hear both sighs of relief and moans of disappointment from all over the world right now) ;)
We put a down payment on a newborn cavalier-poodle mix puppy!

The boys are BEYOND excited to be getting a dog, and Matt can't believe that they finally wore us down. We have spent the weekend discussing names. The puppy is a little boy (what else would you expect in this household!), and is a newborn. He will be ready to come home with us around Easter.

This is what he probably will look like :

We have a lot to do before the puppy arrives, but are excited for the challenge...I think!

Help Parker and I by voting!!

2008-02-04T09:14:00.000-08:00

http://blogs1.marthastewart.com/martha/?rsc=ts_Homepage_Homepage

Martha Stuart is having a contest on her blog.

THE BIG IDEA IS A COMPANY-WIDE COMPETITION THAT GIVES STAFF MEMBERS THE OPPORTUNITY TO SHARE THEIR OWN IDEAS FOR THE FUTURE OF MARTHA STEWART LIVING OMNIMEDIA. I WAS ABLE TO NARROW THE 40 ENTRIES DOWN TO 7 FINALISTS...BUT I JUST COULDN'T CHOOSE A WINNER...SO I'D LIKE YOU TO HELP ME DECIDE. HERE'S A SUMMARY OF THE PROPOSALS FROM OUR 2008 BIG IDEA FINALISTS!

The entry that I am asking you to vote for is the FOOD ALLERGIES publication. This publication will have a large emphasis on gluten free recipes. While there are gf cookbooks out there to pull recipes from, it is always a risk. An expensive risk. Gluten free cooking and baking is not cheap (to purchase a loaf of gf bread is about $6). In my experience, recipes produced in magazines are a home run (due to the fact that many are tried before they are printed by non-gf eaters). If a gluten-eater gives a stamp of approval on a loaf of bread, it is worth the time and money for me to try to make it.

So far, I have only found one magazine that is dedicated to recipes for those with food allergies. That magazine is Living Without (thank you mommy!) and it is fantastic! Unfortunately, it only comes out 4x/year. Any kind of additional publication would be an amazing help to myself, Parker, and any others out there living with food allergies.

PLEASE, PLEASE vote for FOOD ALLERGIES. http://blogs1.marthastewart.com/martha/?rsc=ts_Homepage_Homepage
You can vote every day until the 7th of February.
So vote, and vote often.
Thank you!

Snow Day!

2008-01-28T17:15:00.001-08:00

So, after a week in bed with pneumonia, Andrew was glad to get out with Bren and some friends for a snow day!

The "Fearsome Foursome"

Andrew, Daniel, Brennan, and Amy

Daddy hard at work on the "Snow fort"

Brennan and Amy

Andrew

Inside the snow fort

Sourdough Bread #1

2008-01-16T13:02:00.000-08:00

The taste was good. The consistency was ok (definitely yummy toasted). It was very crumbly, but most gf products are. I changed the recipe a bit, so may try again, and follow the recipe EXACTLY, and see if that makes a difference. Parker loves it!

The sourdough bread - attempt #1

2008-01-15T14:19:00.000-08:00

I didn't get a chance to bake last night, so I am baking this afternoon. The sourdough bread dough looks good. It is rising right now. We shall see...

So now I know why I was so grumpy!

2008-01-14T08:23:00.000-08:00

When I read my last post this morning I thought, "Geez, Emilie!" I really did need a cup of coffee...and maybe some Sudafed! I came down later that day with the bug that the rest of my family has been passing around (how generous of them, huh!). I am usually fairly optimistic, and not usually prone to complaining, so when I do, it is a clue that something is up. I could barely get up off the couch on Thursday night, and Friday was painful, but by Saturday morning I was feeling considerably better! I still seel like I am breathing in ammonia when I inhale through my nose, and am still pretty stuffed up, but all in all, I am able to function.

Last week I discovered a new little health food store in Medford. Of course, I had to pop in and see what kind of gluten free goodies they offered. The couple that owns it is super nice, and they had the new Glutino Pretzel Sticks!!

They taste SO MUCH like regular pretzel stick, but are stronger than typical pretzels, so they are great for dipping. The down side...$6.99/bag. Yup, they are not cheap, but it isn't common that I find something gf that Parker and I instantly fall in love with. I figure they are OK for a treat every now and then. I have to limit Parker though. He would eat the whole bag in one day if I let him (He is a pretzel boy like his Papa. Since M&M's and Tootsie Rolls are out, be will have to fall to the pull of Diet Coke next! :))

I am committed to saving all our receipts and document our spending on GF/CF food this year, so that we have it for tax write-offs next year. Plus, I think that it will be interesting to see how much we are spending on "special diet foods". I am pretty good about not buying TOO many prepackaged gf foods. It just adds up too quickly. Speaking of which, I have been attempting to make a gf sourdough bread. I think that my starter is ready, so tonight I shall bake! We will see how it turns out.

Back in the swing of things!

2008-01-10T08:38:00.000-08:00

Honestly, this transition from Christmas vacation to *regular life* was/is so hard. I have to scream to get the two older boys off to school, and Parker would rather never leave the house. The weather has been terrible, and it seems like everyone in the Rogue Valley has a hacking cough and wants to go shopping to spread to spread their germs to everyone around them. Then we hear on the news that WHOOPING COUGH is going around!! Sheesh! Wash you hands, FOLKS!!!

Because I am allergic to pertusus I have not been vaccinated against whooping cough. Hopefully, we will stay healthy.

I am grumpy this morning. I need a cup of coffee!

SNOW much fun!!

2008-01-08T13:49:00.000-08:00

Parker's new team

2008-01-07T13:14:00.000-08:00

At the end of '07, we had Parker's eligibility meeting for Autism services through the school district. He qualified with "flying colors", and he has a new team of amazing therapists for 2008.

They are (in random order):
Monica (3x/week): Autism Specialist
Kathy (1x/wk): Autism Specialist
Adena (1x/wk): "Play" therapist
Nancy (2x/mo.): Speech therapist
Linda (1x/mo): Speech therapist (SLP)
Barb (1x/mo): Occupational therapist
Alice (1x/quarter): Physical therapist

All of this therapy is "in home" with the exception of Adena. It is a lot of work, but Parker works the hardest of all, so I guess the rest of us can deal!;)

He is making progress and is beginning to show "splinter skills". Although his vocabulary is not expanding much, he is obsessed with numbers and letters. He loves to count and spells words that he sees all around him! (T-O-W-M-A-T-E-R on his cup...T-A-R-G-E-T on the sign). We are encouraged by the progress, and will keep you posted!

Merry Christmas Everyone!

2007-12-24T08:20:00.000-08:00

I had the best intentions. I was going to send out Christmas cards.
Then "Bless A Nest" came, and I went a little bonkers organizing Christmas for 20 of our sparrow families, that I ran out of time! Grrrrr!
So, for your viewing pleasure...

I love this pic

2007-12-04T16:06:00.000-08:00

Brennan lost his first tooth!!

2007-12-02T09:17:00.001-08:00

Mommy and daddy had to assist in the removal of the tooth. It was "hanging by a thread", and he didn't want anyone helping to pull it. But after some discussion and a bit of trickery, the tooth came out! Brennan anxiously put it under his pillow, and this morning... A DOLLAR!!
A big " Hip-Hip-Hooray" for the tooth fairy!

The Special Needs Mommy

2007-10-24T12:27:00.000-07:00

This was sent to me by my fellow July '05 mommy, Tara. Her daughter has been diagnosed with autism as well. Although, the theology of this story does not necessarily mirror what I believe, the story makes my heart warm and my eyes fill with tears. The idea that God chose me to be the mommy of Parker, and that he finds me up for the task, gives me hope.
If you are a crier, grab the tissues.;)

The Special Mother
by Erma Bombeck

Most women become mothers by accident, some by choice, a few by
social pressures and a couple by habit. This year nearly 100,000
women will become mothers of special needs children. Did you ever
wonder how mothers of special needs children are chosen?

Somehow I visualize God hovering over earth selecting his
instruments for propagation with great care and deliberation. As He
observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to
profanity." "Forrest, Marjorie; daughter. Patron saint, Cecelia."
"Rutledge, Carrie; twins. Patron saint, Matthew." Finally He
passes a name to an angel and smiles, "Give her a special needs child."

The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a special needs child to a
mother who does not know laughter? That would be cruel." "But has
she patience?" asks the angel. "I don't want her to have too much
patience or she will drown in a sea of self-pity and despair. Once
the shock and resentment wears off, she'll handle it." "I
watched her today. She has that feeling of self and independence
that is so rare and so necessary in a mother. You see, the child
I'm going to give her has his own world. She has to make him live
in her world and that's not going to be easy." "But, Lord, I don't
think she even believes in you." God smiles, "No matter, I can fix
that. This one is perfect - she has just enough selfishness." The
angel gasps - "selfishness? is that a virtue?" God nods. "If she
can't separate herself from the child occasionally, she'll never
survive. Yes, here is a woman whom I will bless with a child that
the world sees as less than perfect.

She doesn't realize it yet, but she is to be envied. She will never
take for granted a 'spoken word'". She will never consider a "step"
ordinary. When her child says 'Momma' for the first time, she will
be present at a miracle, and will know it!" "I will permit her to
see clearly the things I see...ignorance, cruelty, prejudice....and
allow her to rise above them. She will never be alone. I will be at
her side every minute of every day of her life, because she is
doing My work as surely as if she is here by My side".
"And what about her Patron saint?" asks the angel, his pen poised
in mid-air. God smiles, "A mirror will suffice."

Autism

2007-10-24T08:08:00.000-07:00

So, last week Parker was diagnosed with autism. As much as we were preparing ourselves for this information, it still came as a real blow to actually hear the words. His therapy will be increasing, but the EI (early intervention) that we work with has to do some additional evaluations themselves before they can add to the # of hours of therapy that Parker recieves. Hopefully that process will move quickly, so that we can get movin'. I am always anxious to learn some new techniques to try with him.

Cold feet

2007-09-29T20:59:00.000-07:00

Nothing is worse than cold feet.
I am a warm weather girl, and to be perfectly honest...
I HATE the cold.
I love summer time
Wearing flip flops
Swimming
Fraps from Starbucks and smoothies from my kitchen
Eating dinner on the deck

And now...fall is upon us.
It is cold, and wet, and cold, and rainy, and COLD!!
I know, I know. There is something about being in a warm house, eating homemade soup, watching the rain pound on the windows. And don't get me wrong. That is fun and cozy...for a day or two.
Then the boys get bored,
and runny noses start,
and layers of clothing just to go out and get the mail,
and bundling three cranky boys up to just run to the grocery store.
And NOTHING is worse than COLD feet.
Time to break out some wool socks!!

A well placed taser ™ will take out even the most deadly of ninjas.

2007-09-26T21:02:00.000-07:00

This is a post from Dwight Schrute's blog. Yes, there is a DWIGHT SCHRUTE BLOG!!!!
Very little makes my day brighter than a little Dwight K. Schrute....well, that or an iced mocha!
Here is the link for my fellow Office fans:
http://blog.nbc.com/DwightsBlog/

An excerpt for you!!
When Ninjas Attack!
Every year, when spring comes, my mind goes to one place and one place only, Ninjas.

Every time you read about Ninja’s attacking somebody or assassinating some public figure, it seems to happen in the spring. I’m not sure why, it’s just the way it is.

Maybe it’s the fact that the spring is traditionally the new year in most pagan religions. It is also the Persian festival, “Naw Ruz” or “New Year”.

Whether it is a throwing star to the neck at a bowling alley, a poison spike that sails through an open window and lodges itself in the fleshy part of the leg, or a mysterious black-clad figure with a bo staff, perched up on the ceiling of your garage as you pull in your car from your awesome job, ninja attacks can and will happen anywhere and anytime.

And they happen to the best people too. Just ask my cousin Heindl. She has lost 12% hearing in her left ear from one.

Things to remember:

Be alert. Everybody loves a lert. (Ziggy joke)

Check ceilings first, when doing your safety inspections, that’s where they like to ‘hang’.

The best defense against a ‘shuriken’ or throwing star is a good offense. Also, armor.

You will never beat a ninja at a sword fight, one on one. When the Ninja draws his sword, fire your taser ™. A well placed taser ™ will take out even the most deadly of ninjas.

Show them that you know they’re there. Shout out, when entering a new locale or a suspicious locale, “I know you’re there, Mr. Ninja. Your element of surprise has now been taken away” [I’ve gotten many ‘funny’ looks for this kind of preparedness, but so be it. That is a risk I’m willing to take. Are YOU!?]

But most importantly, remember that a Ninja is only trying to kill you if someone has hired that ninja to do so. So for every ass-kicking Ninja trying to take someone out there is some alienated girlfriend, some enemy rival at the workplace or some Japanese feudal lord who has paid that Ninja to kill. Or worse.

I hope this web log has made your spring a more beautiful and restful time. That was the author’s intent. Also, fear.

Dwight Kurt Schrute, Assistant Regional manager, Dunder-Mifflin Paper
Chairman and Founder, Lackawanna County Ninja Preparedness Council

Halloween costume issue!

2007-09-25T16:11:00.000-07:00

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My boys all LOVE Halloween. Who doesn't love costumes and candy, right?! (we don't do the scary stuff). Brennan is going to be a vet, or as he puts it, "a pup doctor". Andrew is not sure what to be yet, but is excited about all of the possiblities out there. Parker is another story. He will HATE to be dressed up. If he was my first child, I probably wouldn't bother this year, but the older two are SO excited at the prospect of dressing up Parker, that I am not sure what to do. Nothing big or bulky. Nothing with a mask or a hood. Nothing requiring any face paint or make up. I don't want to spend a lot of money on a costume that he won't be happy in, ya know?
I have this dragon costume that my mom made my little brother David when he was small (so the costume is over 20 years old). I thought that it would work for Parker. I tried it yesterday, he screamed. I tried it again today, he hated it, but there was less screaming. I think that if I don't make him wear the hood, and if I keep "practicing" with him every day, maybe he will toerate it when Halloween arrives.

Here are some pictures of my grumpy dragon:

Eating green onions

2007-09-25T16:08:00.000-07:00

Parker's sensory issues are worse. When he can't handle a situation he tends to pull *strong* tastes off his PECS choice board, like pickles. Last night after the costume fiasco, I was making stir fry for dinner and cutting up green onions. He was whining my feet, so I gave him one. Not the hollow end, but a long piece of the solid end by the bulb. He crunched it all down. He then ate a few more before I cut him off. I didn't want him to get a stomache ache. His breath was kickin!!
Here is a short video of my onion-eater!

I wasn't even THINKING!!

2007-09-24T16:05:00.001-07:00

So, I was making brownies (gluten filled) last night for our weekly date with D&E. I started to clean up after I put then in the oven, went to rinse out the bowl, and shoved the gluten covered brownie spatula into my mouth.
Instant panic.
I spit it out into the sink and then rinsed my mouth out with water about 10x.
Really stupid. It just shows that on the GF diet you can never stop thinking. 28 years of not thinking about what I put into my mouth is a hard habit to break.
I took a multi-enzyme, and hoped for the best.
I didn't get sick.
Yea!

Parker talking!! (video)

2007-09-21T12:02:00.000-07:00

Here is some video of Parker talking. His vocabulary is still very small, but he has made some improvements. The *ready, set, DOOOOOOOOOOO* has taken 6 months of therapy to *sink in*, and finally after working with Alisha one day, something just clicked!

We are working on "No!". It is one of the first words that he is trying to mimic.
We are excited about his progress. Slow and steady wins the race, right?!;)

Another school year begins!

2007-09-18T14:00:00.000-07:00

Andrew started second grade at Lone Pine Elementary this year.

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Brennan started Kindergarten this year. He is in the a.m. program, and "wishes school was longer".

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Verbal Apraxia

2007-08-21T15:52:00.000-07:00

PARKER SIGNING THAT HE IS THIRSTY

"I Do Talk To You"
I know you can’t hear me....but I do talk to you.
And I hear everything you say to me too.
I hear when you laugh, when I do something funny.
I hear you yell "Hooray" when I try so hard.
I hear you tell others how you’d never trade me for the world even with all the trials I came with.
I hear you thank God for what a blessing you have been given.
I hear you encourage me when I can almost do it.
I hear you cry, too, when it gets a little harder
And when you ask God "Why?!" your baby.
And I know you know I understand somehow.
And you know I listen when you talk to me too.
But, I want you to know, mom...........
I do talk to you

2007-08-12T14:42:00.000-07:00

BEFORE:

AFTER:

We finally cut Parker's hair. He still didn't have a TON of hair, but the hair that he did have was long and out of control!! So, we took him in to get his first hair cut. He sat on my lap and cried pathetically. IT broke my heart, and I sat and sang the Veggietales theme song over and over again. He finally smiled for daddy and the camera at the end, but if you look closely, he still has tears on his face. He looks a lot older with his new 'do!

It's been a long road...

2007-08-10T15:29:00.000-07:00

I am so sorry that I have not been dedicated to this blog. I know it is how some of you stay current on our family, and I have felt terribly guilty for not keeping you up to date. I have been in somewhat of an emotional rut with Parker, and so I have not had much to say.

The boys have been having a great summer. The swim lessons have been paying off and I have found myself with three little fishes instead of boys!;)

Parker's therapy has continued and we are adding some OT (occupational therapy) to the mix in the fall for some increasing sensory issues. The EI (early intervention) office is closed until the end of August, and we will be applying for an increase in all aspects of his therapy (PT, ST, and OT). We just got results back from his testing done by a new SLP. She was fantastic. Parker scored in his age bracket for his receptive language (what he understands), but is in the 4th percentile for his expressive language. On another test, he scored in the 9-12 month age bracket for his expressive language. Although all of this was expected, it is always hard to see written down on paper. This is all confirming their diagnosis of verbal apraxia. They gave us some tools to help him at this point, but I am very anxious to begin more therapy with him in the fall.

On the gluten front, Parker and I are doing well. I got glutened BADLY from a local restaurant here in Medford, and was REALLY sick for 2 days (no Mucho Gusto for me again!). On the positive front, I found a new restaurant in Klamath Falls called Wingers with an extensive GF menu!! We went there last night while in K-Falls for a visit, and it was YUMMY!!

Parker and I have an new BFF at the Farmers Market here in Medford. She makes GF breads, cookies, cinnamon rolls, and brownies. Her Buckwheat Bread is to die for!!!

I am going to make much more of an effort to blog from here on out. I am off to make some GF chocolate chip cookies. I found the recipe on the Food Network website, and Alton Brown has never steered me wrong in the past. I will let you know how they turn out!

Getting back into blogging

2007-06-07T16:27:00.000-07:00

Ok, I have totally fallen behind in the blogging dept. Boo!
Yesterday, I made the BEST GF cookies. In fact, Matt said that he couldn't even tell that they were gluten free (the best compliment I can get). They were pumpkin-chocolate chip. If you didn't want to use chocolate, you could substitute raisins and/or walnuts. They are more a "fall" cookie, but they were so yummy that I didn't care.

Pumpkin Cookies
2 1/2 cup bean or rice flour blend
1 tsp xanthan gum
1 tsp baking soda
1 tsp baking powder
1 tsp cinnamon
1/2 tsp nutmeg
1/2 tsp salt
1 1/2 cups sugar
1/2 cup margarine
1 egg
1 cup canned pumpkin
1 tsp vanilla
1/2 cup raisins or chocolate chips
Preheat oven to 350 F. Combine gluten-free flour mix, xanthan gum, baking soda, baking powder, cinnamon, nutmeg and salt in a medium bowl.
In a mixing bowl, beat margarine and sugar until light and fluffy. Beat in egg, pumpkin, and vanilla. Add in dry ingredients. Stir in raisins or chocolate chips.
Drop by tablespoons onto an oil sprayed baking sheet. Bake 15 to 18 minutes. Makes 36 cookies.

I got glutened!!

2007-05-14T21:17:00.000-07:00

I got glutened at the restaurant that we ate at last night, and ended up being sick most of the night. Yuck! My reactions seem so much worse as the gluten is out of my system (for the most part) now. Eating out can be so scary for a Celiac. It is a risk to take. It is hard to have the guts to try new places. I am always so afraid. I love to eat out, but I guess in the future I will be more careful!

Safe places in Medford (for sit down meals)
-Thai Bistro
-Red Robin
-Outback Steakhouse
There are definately others, but those are the restaurants that I have consistant success at. Hopefully, as time goes by that list will get longer and longer.

One more year of being a "twenty-something"

2007-05-11T19:03:00.000-07:00

So, today I am twenty nine...I am getting old;).
It has been a great birthday. I still have some gf treats from the lady at the Farmer's Market, so I will indulge a little with a GF cinnamon "roll" later (I am drooling a little on my keyboard just thinking about it). We went to Brennan's Spring Tea at preschool, and I brought GF treats so that Parker and I could enjoy treats with everyone else. Bren and I made Cocoa Pebbles Treats this morning, and they were delish!!

COCOA PEBBLES TREATS

1 box (regular size) Cocoa Pebbles (can also use fruity pebbles)
1 bag of mini marshmallows
1/2 stick GF margarine or butter

Melt margarine in pot on med. heat. When melted, add marshmallows and stir until smooth. When all is melted, dump all of the Cocoa Pebbles in the pot and toss until coated evenly. Press into a foil lined 9x13 pad. Cool and enjoy!!

A rough few weeks!

2007-05-10T14:56:00.000-07:00

I have not been posting lately. We have had a rough few weeks, and to be perfectly honest...I didn't feel up to it. My little sister Erica (9 years old) got really sick, and was diagnosed with ITP. It is an autoimmune disorder where your body attacks the healthy platlets in your body. She had some treatments done, and her platelet count (which was extreamely low) is slowly going up.

One of the Sparrow children that we worked with passed away. This is the part of my job that ravages me emotionally. We have another child that will most likely be dying in the next few weeks. I have not been myself, and have been so drained emotionally. If you have a chance, and are so inclined, please be praying for the families of these children.

On the bright side, we went down to Cali last weekend to pick up the trailer that my grandparents were giving us, and to spend some time with Erica. While we were there, we got to see all my siblings and Sandy at a BBQ at Stefs house. It was a TON of fun, and great to see everyone. We also got to visit the De Anza flea market with Auntie Lynnie which the boys were giddy about.

Today I went to the Growers Market to get some produce, and found a lady selling GLUTEN FREE baked goods!!!! She let me have samples, and her cookies were divine!! Parker and I inhaled the snickerdoodles, and the chocolate chip cookies were soft and chewy. SOOOO GOOD!! I can't wait to go see her again next week!!

Feeling Experimental!!

2007-04-25T18:11:00.001-07:00

So, I have been on a search for a GOOD GF bread. Either in a recipe form or pre-made in stores.
Here is what I have found so far:

GF Pantry Best Sandwich Bread: I made this recipe, and to be honest...threw the loaf out. The "wet" texture made me gag! It was cooked all the way through, but even when I toasted it to the point of charred, it still was moist in the middle.

GF Pantry French Bread and Pizza Mix: I had heard good things about this mix, and I was some what disappointed. It was better than their Sandwich Bread, but still not very good. I have a hard time with the consistency. I made some french toast with it though, and it was ok.

Kinnikinnick White Rice Bread (premade, frozen): I wanted to try this brand, and figured since the mix was the same price as the pre-made bread, that the best thing would be to try the premade kind. That way I was trying it the way that they intended it to taste. I made a grilled cheese sandwich with it. It was ok, but not great. Definitely better than the types I had made at home. I used some toasted with butter to mop up my marinara sauce with dinner the other night, and I thought it was pretty descent when covered in pasta sauce.

Kinnikinnick Bagels (premade, frozen): I had read on another blog about some FANTASTIC bagels (Glutino), but since I have yet to find them in stores here, i bought the Kinnikinnick ones. They are not bad. I toasted the heck out of them ,and smothered them in cream cheese, and pretended that I was back in San Jose, sitting in Main Street Bagels with Lyns, Ty, and Whit...eating a "real" bagel. It almost worked...almost. I think trying them with a flavored cream cheese and some veggies or Turkey Bacon would improve the overall experience.

I have some other recipes to try. Some of them are so complicated, that if I DID make them, and they turned out gross, I would probably cry. I might go to Ashland to the co-op to see what they have there.

I think that they will taste better to me over time. Right now, I am still at the point that I remember what gluten-filled foods taste like, so I am disappointed with the alternative. Over time, I will probably acquire a taste for these gf baked goods, but for now my quest goes on...

To Be Continued...

P is for Parker and Pneumonia

2007-04-24T09:43:00.000-07:00

I haven't blogged in a while, because life has been very chaotic around here.
Thursday: Parker started running a low temp. I chalk it up to teething.
Friday: In the morning Parker seems the same, but by lunch time he is really acting sick: shivering, fever, fussy, and tired. I decided to take him to the Dr. I thought it was an ear infection. We had plans to go to K-Falls for the weekend (Matt was preaching, and we were leading worship over there). By the time I get Parker to the Ped. his temp is 105!! They stripped him down , and gave him a shot of something to help with the fever. They examine him, and decide to do some bloodwork. They were checking for meningitis (among other things). After the blood work comes back, they send him for a chest x-ray. We look at the scans...pneumonia in both lungs! Poor guy. He fever was maintaining around 103, even with meds, but they said that was ok. I will give him the acetametaphen and ibuprofin alternating every three hours around the clock, as well as the antibiotic.

Needless to say...Park and I didn't go to K-Falls.:(

Fast Forward to today: Parker had another temp spike on Sunday night, but seems to be doing better today. We will lay low (think, house arrest) for the rest of the week, but hopefully he will continue to improve as the week goes on.

A weepy day for mommy

2007-04-17T22:25:00.000-07:00

I know it is pathetic, but I started crying in Fred Meyer this afternoon. I just was so overwhelmed with all that Parker and I are/will be missing, and burst into tears. I just never realized how much I love food. I love Krispy Kreme donuts, and everything bagels with dill cream cheese. I love the Old Spaghetti Factory and Togos #24 sandwiches. Do they even make GF sourdough rolls? If they do, they probably taste nothing like real sourdough bread (my absolute favorite type of bread). I want to eat french toast from Denny's, pizza from Willow Street, and black licorice.

But then I realize that I am feeling sorry for myself. I actually am beginning to feel better today. I made myself a YUMMY gf pizza for dinner, and found the joy in warm banana bread with Parker. I remind myself that if I continue to eat gluten, that I am 40-100x more likely to develop intestinal cancer, and all of a sudden...donuts seem pretty unimportant.

Tomorrow is another GF day...but I am vowing to do it with a smile.

Some info for you all!

2007-04-16T22:40:00.000-07:00

For all who are curious:

What is celiac disease?
Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate a protein called gluten, found in wheat, rye, and barley. Gluten is found mainly in foods but may also be found in products we use every day, such as stamp and envelope adhesive, medicines, and vitamins.

When people with celiac disease eat foods or use products containing gluten, their immune system responds by damaging the small intestine. The tiny, fingerlike protrusions lining the small intestine are damaged or destroyed. Called villi, they normally allow nutrients from food to be absorbed into the bloodstream. Without healthy villi, a person becomes malnourished, regardless of the quantity of food eaten.
Villi on the lining of the small intestine help absorb nutrients.
Because the body’s own immune system causes the damage, celiac disease is considered an autoimmune disorder. However, it is also classified as a disease of malabsorption because nutrients are not absorbed. Celiac disease is also known as celiac sprue, nontropical sprue, and gluten-sensitive enteropathy.

Celiac disease is a genetic disease, meaning it runs in families. Sometimes the disease is triggered—or becomes active for the first time—after surgery, pregnancy, childbirth, viral infection, or severe emotional stress.

What are the symptoms of celiac disease?
Celiac disease affects people differently. Symptoms may occur in the digestive system, or in other parts of the body. For example, one person might have diarrhea and abdominal pain, while another person may be irritable or depressed. In fact, irritability is one of the most common symptoms in children.

Symptoms of celiac disease may include one or more of the following:

gas
recurring abdominal bloating and pain
chronic diarrhea
constipation
pale, foul-smelling, or fatty stool
weight loss/weight gain
fatigue
unexplained anemia (a low count of red blood cells causing fatigue)
bone or joint pain
osteoporosis, osteopenia
behavioral changes
tingling numbness in the legs (from nerve damage)
muscle cramps
seizures
missed menstrual periods (often because of excessive weight loss)
infertility, recurrent miscarriage
delayed growth
failure to thrive in infants
pale sores inside the mouth, called aphthous ulcers
tooth discoloration or loss of enamel
itchy skin rash called dermatitis herpetiformis
A person with celiac disease may have no symptoms. People without symptoms are still at risk for the complications of celiac disease, including malnutrition. The longer a person goes undiagnosed and untreated, the greater the chance of developing malnutrition and other complications. Anemia, delayed growth, and weight loss are signs of malnutrition: The body is just not getting enough nutrients. Malnutrition is a serious problem for children because they need adequate nutrition to develop properly.

Another one bites the (GF) dust!!

2007-04-16T16:01:00.000-07:00

Well, after wondering for a while, we have discovered that I, like Parker, have Celiac Disease. It actually explains SO much within my life dating back from my childhood. All of the things that I thought were not related, all come back to this disease. I am sad to be having to give up so many foods, and change my lifestyle so drastically, but am glad that I will soon be feeling better.

Currently in my oven- Banana Bread and Sandwich Bread. The banana bread I know is yummy, since I have made it before for Parker. The Sandwich Bread is a new recipe. I will let you know how it turns out!

A Whole New World!!

2007-04-11T17:29:00.000-07:00

In our family, the #1 favorite meal is quesadillas. The boys will choose that ANYTIME it is offered, and never seem to grow tired of them. Parker has never been able to enjoy this favorite meal with his brothers...until now! HealthWay (a local health food store) has just started carrying GF Brown Rice tortillas. Those, along with some soy cheese, has completed the ingredients needed for the favorite meal! He is enjoying some as we speak , happily dipping the wedges in some fresh salsa. Yea for GF tortillas!!

Easter-GF style!

2007-04-11T14:10:00.000-07:00

Having a GF Easter this year was easier than expected!

Friday night: The older two boys dyed eggs after Parker went to bed. I was unsure about gluten in the dye, and it would definately be MESSY if we tried to include Parker this year. Next year I will be more prepared.

Saturday: It was a busy day. Andrew had TWO back to back birthday parties to attend. Brennan and I had a non-GF date (thx to Papa and Grandma Sandy who sent the boys Starbucks cards for Easter). See pic above. The Crawford family came over and we had an Easter egg hunt and BBQ. It is great celebrating with another GF family, no fear of contamination! We filled the eggs with freeze dried fruit and little goodies like bouncy balls, erasers, and other small toys.

Sunday: Church in the a.m., and then BBQ and Egg hunt with the Jacobs/Pepin families. The kids had a ball. I filled Parkers eggs with Smarties and GF Jelly Beans and hid his on the patio. It worked out well since he can't stand or walk on grass alone yet. The eggs were found quickly and the hunt was over in less than 3 minutes!:)

Everything was so easy this year. I know it will probably get harder as Parker gets older, and wants to participate in public hunts, but for now I am happy!

Cilantro Chicken Soup - 6 little thumbs up!!

2007-04-04T15:50:00.000-07:00

We made some Cilantro Chicken Soup for dinner a few nights ago...and it was a HUGE HIT!! Woot! All three boys loved it, and Parker ate 3 bowls!!! It had all of the components of a sucessful Sampson meal

1) It was easy, which is very important to mommy :)

2) It was healthy and well balanced containing meat, veggies, and beans.

3) It was LOVED BY ALL AND GLUTEN FREE!!

Often times, I have to cook 2 meals. Those times that I try to cook GF for the whole family it is noted and not enjoyed by the non-gf ones. I am stoked to find recipes that are yummy, and that are great for the whole family.

A special THANK YOU to my wonderful friend, Alisha. Without you, I would be lost and alone on this GF road.

The recipe was her's, but I made a few changes. Love you, Alisha!

Cilantro Chicken Soup

Begin by boiling 1lb. chicken meat, until well cooked (I used boneless, skinless, thighs). Cut chicken into small, bite size pieces. Put chicken into large soup pot.

Add in:

~two stalks of celery, sliced small

~1/2 cup sliced green onions

~8 large mushrooms sliced and sauteed (I sauteed them in minced garlic)

~1 cup cilantro leaves

~1/2 teaspoon celery salt

~1/2 teaspoon garlic salt

~1/4 teaspoon pepper
~ 48 oz. organic gf chicken broth

~15oz. can of northern beans or pinto beans (drained)

Let the soup simmer for about 2 hours on low. I served with some GF toast strips for Parker (he thought that sipping them was GREAT fun!) and some breadsticks for the rest of us.

Newsboys!!

2007-03-27T15:25:00.000-07:00

I was so excited that last night we got to go to see the Newsboys in concert, here in Medford. It was such a FABULOUS concert!! We went with our great friend Brad (I miss you, Alisha), and had so much fun! It was Matt and my 6th time of seeing the Newsboys in concert, and they keep getting better.

It was great to have a night out, and my sickie son was in great hands (thx, Beth!)

Two ear infections, One ruptured eardrum, and a Partridge in a pear tree!!

2007-03-27T14:58:00.000-07:00

Parker has finished his antibiotics for his last infection, and has not been getting better. The weekend was horrible. He was just so sick. Saturday night he was up crying three times with me. He has slept so well since being GF, that I though maybe we had made a boo-boo, but he was showing none of his other gluten symptoms. We put him to bed Sunday night, medicated, bathed, and humidifier blasting. He slept great. He woke up Monday morning with snot everywhere, including his ear. I got him all cleaned up, thinking that he had wiped his nose and then rubbed his ear (gross, I know!). A few minutes later I notice that his ear is leaking (ummm...yuck!), and after getting him cleaned up again, we call the ped. He is seen in the morning, and the doc says that both ears are badly infected, and his right eardrum has ruptured. I was told that the reason he seemed better Monday than over the weekend is that after the eardrum bursts, it relieves the pressure and pain in that ear. We are given prescriptions for a stronger oral antibiotic, and a eardrop antibiotic. Hopefully, this stuff will work, and he will be back to his usual self!

General Mills...I love you!!

2007-03-19T16:09:00.000-07:00

General Mills cereals have been making some changes. Now some of their cereals are GF!!!
I will still have to read the labels carefully, because there are some older boxes out there.
NOTE of CAUTION:Some of these contain oats, which most celiacs eat, although we have yet to try it with Parker.

Double Ear Infection!!

2007-03-19T08:10:00.000-07:00

We are on the antibiotic route AGAIN!! We took Parker in because his pink eye was not clearing up + he starting running a fever. He has a double ear infection. Poor guy. So he was started on some major antibiotics, and we began giving him probiotics at home along with them. The antibiotics were making his stomach bad, but once we started the probiotics we were on the road to recovery.
Hopefully today we will be making some GF playdough. Brennan has been begging for playdough for a week!
I will post after we make it, and let you know how the recipe turns out!
PS- Trader Joes Pear Sauce hides the taste of probiotics well, and is OH SO YUMMY!!!

A small gluten panic!!

2007-03-13T17:22:00.000-07:00

Holy Pink Eye, Batman (thx,Lyns...I have been saying it all day cuz of your blog;)
I just had a small panic about the eye drop Rx that Parker started yesterday. I didn't even check to see if it was GF.
Called the manufactuer.
It is.
Whew! (wipe brow)
You would think that Celaics can only get gluten from food, but that is not true.
Cleaning supplies, shampoos, soaps, dish soaps, sunblock, toothpaste...all can contain gluten.
Gluten Free product of the Day:
Mary Kay SunBlock (thx Jen)

Pink Eye!!! GROSS!!

2007-03-13T09:01:00.000-07:00

So, first Matt got it. Then Brennan. Then Andrew.

Then it seemed to be all better and we went to Disneyland.

Then we return, and Matt gets it again! Now Parker.

I am losing the battle against Pink Eye in my home. I am washing everything in sight that could be re-contaminating us. Yesterday, the doctor did a swab of Matt's eye to see if it is bacterial or viral, as he has now finished his Rx.

Oh, man...please Lord, keep it in the *boys club*. Don't let the mommy get it!!

Disneyland!!

2007-03-13T08:36:00.000-07:00

So, we had a great time in Disneyland. The weather could have not been more perfect. Andrew was a little daredevil, and rode every ride that was thrown at him. His favorite ride was California Screamin'. Brennan loved the rockets, and enjoyed the characters a lot. Parker rode with us everything, and liked all the characters except Woody (Toy Story).

I was a little disappointed with Dlands Gluten Free list. It contained all of the restaurants in the parks that he could eat at, but at each one we would have to speak to the chef as to what was gluten free. That may be fine for an adult, but for a picky 19month old, we could end up at 4-5 places before finding something that I thought he would eat. I just ended up packing all of his food every day, and they gave me NO ISSUES at bringing in large bags of food daily.

Here are some pics for your enjoyment:

Kisses for the Mouse

Buzz and the Big Boys

Parkers favorite ride

Traveling with a child with dietary restrictions

2007-03-01T20:19:00.000-08:00

So, we leave for our trip to Disneyland in two days (yipee!!). This will be our first trip away, since Parker has been diagnosed with CD. I should re-phrase that. We have gone down to Cali and stayed at my mom's house, but never have yet had to do the hotel/multiple days thing. I took for granted how easy it was to travel, prior to our "new life". Now, meals have to be planned, prepped, and thought carefully through. Shopping has to be done, and food brought with us...WHAT A PAIN!!!

We are going to Disneyland. Supposedly, the "Happiest Gluten-Free place on Earth". I have spoken to "Disney Dining" twice. I have permission to bring as much food as necessary into the park, plus I was told that "City Hall" on Main St. will provide me a complete list of the restaurants within Disneyland and CA Adventure with gluten free choices, and who to speak to at each place to ensure that there is no cross contamination. It is nice to know that we will have some dinner options, but we will still bring all of Parker's lunches and snacks into the parks, as well as breakfasts at the hotel.

I can't wait to let you know all about our trip.

Yee-Haw!! A GREAT DR.S APPOINTMENT!!

2007-02-28T16:27:00.000-08:00

Today Parker had an appointment with Dr. Narus who is a pediatric neurologist. Let me start off by saying that Matt and I both LOVE him. We think that he is a great doctor. He was super thorough, asked a TON of questions, and explained everything to us. His basic synopsis is that his gut is telling him that there is nothing neurologically wrong with Parker. He still wants to do a CT scan here in Medford, but we are feeling GREAT about it since Parker does not have to be put under for that. There are still some unanswered questions about his metabolic work up, but nothing too alarming at this point. Had Parker not started walking last week I think that this appointment would have been very different, but he is walking more and more every day.
He will be seen again after the CT scan (which is at least a few weeks out), and we will go from there, but we are very hopeful after such an encouraging appointment!! Thank you all for your prayers!

Want to know a secret?

2007-02-27T15:27:00.000-08:00

I think that I am a shame to mothers of Gluten Free children everywhere. Every gluten free blog I read is full of people who love to cook gluten free dishes, and they do it beautifully. They show pictures of their incredible creations, and I drool a little bit on my keyboard. Having a child with CD means that cooking is a must. You must cook most (if not all) of your meals and bake most (if not all) of your baked goods. Here is my dirty little secret...
I hate to cook. I don't enjoy it, even a little bit. I am not very good at it, and it is not fun for me.
There.
I feel better now that it is off my chest. People have told me that I will enjoy it more, if I do it more. I am trying. Maybe if I was good at it, I would like it. But there are some things that I actually DO make well, and I don't even find joy in making those things.
But sometimes you have to do things in life that you do not like. I could probably get away with cooking less, if I made my whole household gluten free, but I am not ready to do that yet. So, for now, I cook 2 dinners most nights. I am aware that someday that will have to change. Right now Parker is allergic to dairy and corn in addition to having CD, so my choices of recipes are somewhat limited.
So, I keep plugging away...doing what I need to do to keep Parker happy and healthy. Right now, I have a loaf of bread to bake.

Tomorrow we see the neurologist

2007-02-27T12:20:00.000-08:00

Tomorrow we take Parker to see Dr. Narus. He is a pediatric neurologist here in town. He also sits on the metabolic board up at OHSU. He has the blood work results in his hot little hand from all of Parkers tests a few weeks ago. All I know is that there were six test results that came back "out of the normal range". I am sick with worry, but I know that my God is a great God, who loves Parker more that Matt or I.
Before Parker was walking, we were told by our pediatrician that Parker would definately have to go up to Portland for an MRI. Now that he is walking (although not regularly), we are hoping that is not the case. We probably will still have to go up there for more blood work, but who knows...
If you think about it, please be praying for us.

He is still doing it!!

2007-02-23T07:41:00.000-08:00

I know it is a silly fear, but every time I put Parker to bed, I wonder if when he wakes up if he will still be able to walk. It still feels like such a miracle, that I am afraid that it will go away. So far, so good!!

It is a Miracle!!!

2007-02-21T20:49:00.000-08:00

Parker is WALKING !!
Today, Parker started walking!!!!!!!!! I am not even joking! Matt and I were working with Parker, doing some PT, and he just let go of me, and walked to Matt.
He skipped the *standing on your own* stage, and the *take two steps, and fall down* stage. He has moved to the *I can walk down the hall, through the kitchen, and into the dining room, alone* stage.
I am crying as I type this, because I truly believe that this is a miracle. We have been praying that Parker would walk prior to his neurology appointment on the 28th of February. And today he did it!! Andrew's birthday is Friday, and he told me that Parker walking is a great birthday present for him!!
I think that this will help his CD ENORMOUSLY!! If he is off his hands and knees, he will definately pick up less gluten crumbs off floors and stuff!! Yee-Haw, Baby!!

Picky GF eater!!!

2007-02-20T16:40:00.000-08:00

You know that age between 18 months and two-years-old that children decide that they have control over what they eat? They become "picky". Some kids stay that way. I have been fortunate with my other two fabulous sons, that it was a short lived phase. Parker has unfortunately entered that stage. He always is in the mood for chicken nuggets and pasta. Unfortunately, his GF chicken nuggets are $5/box, and there are only 10 small nuggets in a box. He eats 5 in a sitting. He also loves GF pasta, with or without sauce. He will eat unlimited fruits and veggies, so that is a blessing!! I have been searching for some "kid friendly" gluten free recipes. I found a great cookbook:
Wheat-Free, Gluten-Free Cookbook for Kids and Busy Adults, by Connie Sarros

It has some yummy recipes that I am excited to try. I will keep you all *posted* (tee-hee-hee)

So Gluten is just breads and pasta, right?

2007-02-15T07:25:00.000-08:00

I am finding that many people have no clue what gluten is. Those that say that they know about gluten say "Oh, like bread and pasta, right?". And then there are those few and far between that say "Oh, gosh...gluten is in everything!" That about sums it up. Gluten is in just about everything.
First there are the grains:
Wheat (Einkorn, Durum, Faro, Graham, Kamut, Semolina, Spelt)
Rye
Barley
Triticale
Oats are a maybe
Then there are all of the derivatives...too many to name here. All the secret things that gluten is hidden behind.
You would be shocked. Ketchup, soy sauce, french fries..all can contain gluten."What!", you may say. "How is there gluten in any of those things?" Manufacturers use gluten as a thickening agent. It is hidden in things like "natural flavorings". You can buy safe alternatives to many products. Some choose to just eat completely natural. I think we are a combination of both. Parker eats more fruits and veggies than any 18 month old I know. He eats them both dried and fresh MANY times a day. GF bread is so expensive (about $5/loaf), that I bake him his own at home.
We DO find GF treats in the mainstream grocery stores. For instance, last night was Valentines Day. Thank Goodness for Peeps!!

The beginning of a journey

2007-02-14T18:04:00.001-08:00

I was never into blogging, but perhaps it will be therapeutic, and I am willing to try anything. I was actually ecstatic to discover that Parker had Celiac Disease (CD). I was so tired of knowing that something was wrong, and not being able to fix it. He was sick for months. He gained no weight between his 12 and 15 month appointments. He had diarrhea 8+ times a day. Test after test showed us nothing, and he seemed to be in pain physically. I told every doctor available that he seemed to hurt and wince when he moved. They did x-ray's and told me he was fine. Then one day, a friend mentioned "maybe it's gluten?". I looked it up online, and called his pediatrician that day. Lo and behold, Celiac Disease. My friend and foe. After one week of being gluten free (GF). Parker was pulling up and crawling with no apparent pain. Within one week of being GF, Parker's diarrhea had stopped. Within one week of being GF, Parker had gained 10oz.!!

I say Celiac Disease is my friend, because it is manageable. As long as Parker does not consume ANY gluten, he can lead a healthy, normal life. When even a tiny amount enters his body, he gets sick. Most days are good, some days are bad. The bad days are becoming fewer and fewer as I get better about cooking, reading labels, and cross contamination.
Today was a good day.